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IntroductionIntroduce yourself to other members
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New to RettDiscussions on Symptoms, Testing and new diagnosis of Rett syndrome
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GeneralCreate topics here that don’t fit into any other existing category. |
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Site FeedbackDiscussion about this site, its organization, how it works, and how we can improve it. |
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ActivitiesA place to discuss and recommend activities
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Clinical TrialsNews and discussion about ongoing clinical trials around the world.
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DaybueDaybue (Trofinetide) is the first FDA-approved prescription treatment for Rett syndrome in individuals aged 2 and older, aiming to improving symptoms like communication, motor skills, and mood, though it’s often associated with significant diarrhea. It’s an oral solution requiring careful management for side effects.
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