Discussions on Symptoms, Testing and new diagnosis of Rett syndrome
Whether your loved one is newly diagnosed, suspected or going through testing for Rett Syndrome you probably have a lot of questions, doubts and anxiety about a Syndrome you may never have heard of before.
The early stages of your Rett journey can be an emotional rollercoaster but for some diagnosis can be a relief that they finally know what they’re dealing with.
Use this section to ask any questions, voice your fears or just say how your feeling. So many of us have been there and know exactly how you feel.